Supporting Parents with Chronically Ill Children
Navigating the world of parenting a chronically ill child is undeniably one of the most profound challenges any parent can undertake. This journey transformed my life in ways I could never have anticipated. Between juggling work, managing household chores, keeping up with countless medical appointments, incessant phone calls with insurance agencies, and balancing social engagements, I often felt overwhelmed. Especially, when it came to ensuring my son was receiving proper educational support and managing missed school days due to health issues.
As the years rolled on, my world seemed to grow smaller. Conversations with friends and family became infrequent, as our lives became strikingly different. Over time, the support from close ones can diminish. Strapping on the heavy armor of Warrior-Mother so you can forge onward makes you less relatable, and while it was painful, it was also a beautiful and pure experience. I could only focus on things that mattered. Every tiny miracle was a vivid burst of light.
Parents who are raising a chronically ill child, need an arsenal of resources, ranging from counseling to nonprofit organizations dedicated to our cause. As a friend or family member of someone experiencing this challenge, it can be hard to know how to help.
Here’s how you can offer support to parents facing these unique challenges:
1. Stay Connected: Regularly check in with them. Share your mundane daily tales, bring in some humor, and lend an ear to their stories – be it about medical appointments, IEP discussions, or the sheer fatigue they combat daily.
2. Foster Empathy in Kids: It’s crucial to teach children empathy and patience. Rather than shying away, engage them in discussions about peers who might appear different. A wonderful resource is the book “Brother’s Day Out,” which beautifully exemplifies nurturing empathy and understanding.
3. Encourage Interactions: Motivate your kids to play and bond with children who have chronic illnesses. However, always communicate with the child’s parent beforehand to set the stage for a positive interaction.
4. Offer Practical Help: Consider sending them a meal. It’s a simple gesture but reduces one chore off their exhaustive list.